trshtwns01 (trshtwns01) wrote,

Oh, I want, I want

I've found something that hit my heart. Formed a lump in my throat even. I'm trying to talk myself into buying some of this but I can't bring myself to do it.

Pediatric GERD Awareness Products

As an update, we went to Matthew's GI doctor on Friday. I thought things were doing really well, because he went from complaining about the pain in his tummy and esophogus every day to only 2-3 times a week on the new medicine. Which, by the way, he is still having to take 4 times a day. I was kind of hoping to get rid of it. *laugh* Anyway, while I thought this was vast improvement, the doctor was still concerned. He said with the erosion/ulceration that has happened in his esophogus, ANY amount of reflux is keeping him from healing at best, making things worse at the worst.

They are supposed to schedule YADT (Yet another damn tubing) for an impedence probe again this week at Children's Hospital. This time, it will be while on medication. This will measure exactly how much is coming up, and whether there is acid or other fluids coming up even when he isn't complaining. For example, he tends to have it pretty bad while he's sleeping. This additional tubing means another morning to drive down to Children's, which in the mornings with traffic takes about an hour and a half, then taking the next morning off of work to have it removed again down at Children's.

Based on the results, the doc will make a decision on the surgery. Scott says we'll then have to discuss it. Scott isn't too keen on him having this surgery, and I'm torn. While I don't like him having yet another surgery, having already had five in his four short years, I want him better. I want him without pain after eating or while sleeping, I want the constant infections to stop, I want him to go through life without having headaches because his head is so clogged up. Matthew has had surgeries before, as I've said. But they have all been 'minor' outpatient surgeries. From what I read on the Fundoplication, the hospital stay would be 2-3 days. He would be on a liquid or soft diet for 2 weeks. Like everything medical, there are scary things it says about it on the web. I should really not read about things like this :) Things like they can no longer burp or vomit when they have had this. Umm. WHAT?

The thing that really makes me wonder as I read up is this statement on the web site:

According to a study published in the American Gastroenterological Association (AGA) journal Clinical Gastroenterology and Hepatology, more than 60 percent of the children who received surgical fundoplication to control gastroesophogeal reflux disease (GERD) had recurring symptoms of the disease months following the surgery.

The procedure is the third most common major surgical procedure performed in children.

Why have major surgery if it probably won't work for more than a couple of months? Hell, if I had known when we had his sinus surgery that he would end up being WORSE than before it, I never would have put him through those two surgeries. The doctors lead you to believe it's some sort of magic bullet that will make them all better. It's just not true.

I really am tempted to buy Matthew and I matching GERD awareness T-Shirts. Before all of this, I had always thought reflux was just spit-up, like some of their products say.
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