trshtwns01 (trshtwns01) wrote,

It's great to learn, 'cause knowledge is power!!!

No, I haven't been watching Schoolhouse Rock again :)

I just received three books from B&N which I am really looking forward to reading. They were the only ones I could afford right now, since the others are all well over $100, but misskerri helped me through the Interlibrary loan process to try to get one of them here from a medical library in Houston or somewhere like that.

The first is Positive Options for Antiphospholipid Syndrome (APS), second is Sticky Blood Explained (Antiphospholipid Syndrome) and finally More Sticky Blood (Hughes Syndrome).

Antiphospholipid Syndrome, otherwise known as APS, Hughes Syndome (after the doctor who found it in the UK) or Sticky Blood, as most of you know, is an auto-immune disease I have which will require me to be on blood thinners for the rest of my life. So far, it has caused me to have a clot and lose one half of breast reconstruction, two pulmonary embolisms (emboli?), and a great deal of fatigue and brain fog. It was also probably behind multiple miscarraiges. I am well controlled now on my meds, although I am covered in bruises. Yeah, put a klutz like me on blood thinners and watch the colors come back. Can't WAIT until I restart TKD.

Anyway, I'm a knowledge hound. I want to know everything possible about something that affects me, not only so I am armed with knowledge but so that I can better inform others. It saddened me to find out there was very little information out there on the disease, doctors who have no idea what it is unless they happen to be a rheumatologist or hematologist, and it is another of those 'but you don't look sick' problems.

I am totally psyched about reading these books, and will hopefully be doing a review here as well as on the APS Forums.
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