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Not in a good place

SOOOO glad GS is coming here tomorrow.

Today I went to get the results from the bloodwork done after the clots in my lungs. I told Scott to pray for everything to be negative, but that went unanswered.

I just can't get a fucking break, can I?

It isn't just one thing, either. Here is why I have had three clots:

- Anticardiolipin was low-med positive
- Lupus Anticoagulant reflex was very high on the PTT-LA and medium high on the PTT-LA.
Also very high on dRVVT and somewhat high on the dRVVVT Mix
(This does not mean lupus. It is just something that was early on associated with
lupus and the name stuck)
- I also have an A1298C mutation in the MTHFR gene, with elevated levels of

What does this mean for me?

- I now have to take folic acid, B6 and B12 toi lower homocysteine levels
in my blood
- I will be on blood thinners for the rest of my life. Coumadin for the
next six months, and then we can discuss whether I can move to Plavix
and baby aspirin.

I've got some research to do, for sure


Dec. 12th, 2007 08:18 pm (UTC)
Do you drink?

We talked about Plavix at some point, but it isn't as good as Coumadin since it only works for arterial clotting and not venous. Why do you have to take Coumadin?
Dec. 13th, 2007 12:57 am (UTC)
I have an occassional drink at new years and sometimes wine if I feel like I want it but I'm not really a big drinker. Being on Coumadin shouldn't hinder drinking that much but you do have to be careful. You won't be able to go hogwild every night but once in a while won't hurt. In fact, my rheumatologist tells me I should have some good red wine at night each night. Lol, it's supposed to help the the blood.

I have to take Coumadin because in 2006 (Jan/Feb), I went to the hospital with pnuemonia. Doing a CT scan they found 2 clots in my right lung. My family has a history of clots so I'm probably predisposed to them. Not to mention that I'm disabled and don't have an active life which leads to sitting a lot.
Dec. 13th, 2007 12:58 am (UTC)
Sorry that above comment was me. I had a brainfart and forgot to log in. If you have anymore questions, I'm happy to answer what I can. Hang in there.