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Matthew update

It appears that Matthew is on the mend, but we have started working to find out WHY he is always sick. When we went to the doctor today...


At what point does God say 'Ha! Just joking!'? I hear a scream, run back there and Matthew is bleeding. It's all over his hands, his face, his clothes and the floor. Michael was saying 'Sorry, sorry, sorry', yet claims he had NOTHING to do with it. SOMEHOW, Matthew's nose connected with a game they have. I just finished packing his nose and putting ice on it and he's fallen asleep. Back to my update *laugh*

Anyway, we went to the doctor today to get release for him to possibly go back to school tomorrow. He hasn't had a fever since early Wednesday morning, hasn't thrown up since Tuesday night and seemed to be rehydrated and feeling good. While he is doing better, we discussed that this was his third infection in just over two months and why that might be happening. We looked back at his history and realized he has almost constant ear infections unless there are tubes in his ears, he had a sinus infection for almost a YEAR before they did surgeries for that, he's had pnuemonia, he has excema, they always seem to think he has allergies or other assorted issues, and he gets every virus that goes around. When he got some blood testing done before one of his surgeries (He's had FIVE), they found that he never produced antibodies after several of his immunizations.

So, I got referred to an immunologist (or whatever they are) and SHOCKER he could get me in the same day. We spent a good 3 hours in their office going over his history, looking him over and coming up with a plan. He took three vials of blood, which will get tested for all kinds of antibodies and immunity factors. He then gave him a PPV vaccine since he was showing NO immunity to the pnuemococcal varieties. He should have been born with some, and then got more when he got the Prevnar vaccine. In four weeks, we'll go through all this testing again and see if his body reacted at ALL, or maybe if he get some after the shot but they quickly faded from his system somehow. We'll also do a full panel of allergy testing to supplement the small one his ENT had done.

I do hope they find something that could be causing him to get sick so often. I think it makes Matthew think of himself as the 'sick one' when he sees his brother never getting sick and he knows that he has a full panel of doctors. It would be great for him to only get the normal sniffles and scrapes a regular 3 going on 4 year old gets.

I have some happy stuff, but I want to give it some distance from my dumping events and my feelings about them, so it will be another post later.


( 4 thoughts — Whatcha' think? )
Dec. 2nd, 2004 05:24 pm (UTC)
I don't know if I've ever mentioned that one of our twin boys is also named Matthew. He is scheduled for surgery to put tubes in his ears. While Matthew and Justin are identical twins there was significant difference in their birth weights (TTTS) and Matthew gets sick ALL the time. Kind of like my twin and I. I was always the sick one.

Kevin (my sweetheart) brought a son to our family and Craig has had similar problems as what you describe, though not to the same extent. He has had chickenpox twice because he has trouble building natural immunity and producing antibodies as well. He was put on some dietary supplements a while back, however, and his bloodwork has been greatly improving.

I hope things will be better for your Matthew soon.
Dec. 2nd, 2004 07:23 pm (UTC)
It's hard to see a child sick all of the time, especially when they have to see their twin running around without being sick.

What was the birth weight difference in your two? Who was the donor child? My guess is Matthew was the donor. Do you find it true, what I've heard about TTTS babies that the donor, although bigger, tends to be sicker and the recipient, although smaller, tends to be a much stonger child as they have had to fight for what they get. Did you find it this way?

I'm hopeful that my Matthew's immunologist can find something that will strengthen his system so he isn't so sick all the time.
Dec. 2nd, 2004 07:31 pm (UTC)
Matthew was born with... hm... 1950g (dropped to 1600 in 24 hrs) and Justin with 2450 gramms.

TTTS seems to run in my family, as my adoptive parents had twins (its my bio aunt) where only the smaller twin survived. I was born with 940g and my twin with 2100g. My twin has always been the stronger and healthier from the two of us.
Dec. 2nd, 2004 07:37 pm (UTC)
I reread and realized I typed it backwards - donor = smaller, recipient = bigger. Yes, it sounds like that was the case with your twins and with your family.
( 4 thoughts — Whatcha' think? )