trshtwns01 (trshtwns01) wrote,

NOT helping

Ok, my visit with my oncologist today did NOT help things. I don't know what I was expecting, but it certainly wasn't what I got.

I felt bad because Matthew was a bit sick, so he stayed out of school and had to go with me. Thank God he didn't really understand what we were talking about and we were able to use words he couldn't understand yet like 'improved mortality'.

Anyway, we changed me from Tamoxifen to Raloxifene, and I started it today. This is my chemopreventative regardless of what I decide to persue. I was expecting, upon hearing my concerns, that he would try to placate me. I figured I would get that we don't KNOW I'm going to get cancer, or when it would happen. There isn't a need for drastic measures, but that they are an option.

Instead, I get that because my mom has the same mutation in BRCA2 we have to assume that there is a link and that I will probably get it - we just don't know when. I might not get it for years, or I might already have microscopic cancer cells forming that could only be seen under a microscope, and because they are microfocal, even if you removed cells you might not find the cancers until they spread. Taking Tamoxifen or Raloxifene might slightly decrease my chance of getting it, but not by much and it doesn't change the mortality if I do. The only option I have that will significantly change my chances of breast cancer and reduce the mortality from it would be to get the mastectomy and oopherectomy.

Thanks. I was in tears by the time I left.

I certainly hope the breast cancer researcher at UT Southwestern is a bit more hopeful tomorrow, because I could sure use it.


On a related note, should I start putting the cancer talk behind a friends filter that only those interested see, or behind a cut so that you only see it if you want to? If a filter, who would want to be on it?
Tags: brca
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