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JUST what I needed.

Yep, EXACTLY what I needed today. Of course, I don't think there is a good day for bad news.

My oncologist called about my mother's genetic testing. She has the same genetic variant that I have. Since she has had breast cancer twice, and her sister and mother have both had it, and her mother died from complications of ovarian cancer, things are looking more difinitive now.

1) I have to start on Tamoxifen immediately. It's already called in.

2) The oncologist said it would be a good idea to go ahead and get the hysterectomy, especially since I'm already going into menopause.

3) We should seriously reconsider our plan to wait 5 or so years before getting the mastectomy and reconstruction, and do it more like in 1 or 2 years.

Why do I feel like such a strong, intelligent person as my body just breaks down around me? Why do I go back and forth between crying (and wanting to go ahead and get everything taken out NOW so I don't have to think about it anymore) to absolute denial (they don't really know 100% that I will get breast cancer, so why take drastic action?).

I'm just tired. I want someone else to make the decision for me. I want Scott to say 'I think you should do what your doctors think is best'.

Time to call Dr. Blumenschein for a second opinion.



( 6 thoughts — Whatcha' think? )
(Deleted comment)
Aug. 28th, 2006 10:32 pm (UTC)
I don't remember. I'll have to see if I can find her paperwork.

I actually ended up changing what I'm doing. Since he wanted me to do Tamoxifen, I found a study on Tamoxifen as a preventative measure in high risk patients who have never had BC. I have an appointment for screening this Friday, and then would get all KINDS of tests (bloodwork, needle aspiration, small biopsies of clean breast tissue, etc.) a couple of weeks later, be on either Tamoxifen or a placebo for three months, stop, get the tests done again, and then they would check back every so often. I could then go on Tamoxifen for the 5 years if I wanted to, so it would only delay taking it 3 months. I'm really all about clinical trials and anything we can do to help them learn, so we'll see how this one goes.
(Deleted comment)
Aug. 29th, 2006 03:06 am (UTC)
Well, there is good news and bad news. The bad news is that the doctor got my info from the coordinator and said that the BRCA2 variation disqualifies me for the clinical trial. The good news is that he is intrigued by the fact that I am one of only 13 families that has been found with this particular variation. He wants to take me on as a patient, still do a lot of tests, look at what I have so far (films, hormone levels, sonos, etc.), and help me come up with a game plan. I have a feeling that with my next to nonexistant hormone levels, they'll tell me Tamoxifen might not be a good choice.
Aug. 28th, 2006 09:04 pm (UTC)
ly. mi.
Aug. 29th, 2006 12:17 pm (UTC)
*hug* Thanks
Aug. 29th, 2006 03:49 am (UTC)
i cant imagine being faced with such hard decisions. ill say a prayer for you tonight.
Aug. 29th, 2006 12:18 pm (UTC)
We all have hard decisions in life, they just come in different forms. The prayer is greatly appreciated.
( 6 thoughts — Whatcha' think? )