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Not in a good place

SOOOO glad GS is coming here tomorrow.

Today I went to get the results from the bloodwork done after the clots in my lungs. I told Scott to pray for everything to be negative, but that went unanswered.

I just can't get a fucking break, can I?

It isn't just one thing, either. Here is why I have had three clots:

- Anticardiolipin was low-med positive
- Lupus Anticoagulant reflex was very high on the PTT-LA and medium high on the PTT-LA.
Also very high on dRVVT and somewhat high on the dRVVVT Mix
(This does not mean lupus. It is just something that was early on associated with
lupus and the name stuck)
- I also have an A1298C mutation in the MTHFR gene, with elevated levels of
homocysteine.

What does this mean for me?

- I now have to take folic acid, B6 and B12 toi lower homocysteine levels
in my blood
- I will be on blood thinners for the rest of my life. Coumadin for the
next six months, and then we can discuss whether I can move to Plavix
and baby aspirin.

I've got some research to do, for sure

Comments

( 14 thoughts — Whatcha' think? )
(Deleted comment)
trshtwns01
Dec. 10th, 2007 07:17 pm (UTC)
Yeah, I tested negative for Factor V and Factor II. They said the combo I have is antiphospholipid syndrome (APS) and MTHRF.

Is it just me, or fitting that when I read MTHRF I remember it as MoTHeRFucker?
(Deleted comment)
divamanda23
Dec. 10th, 2007 07:07 pm (UTC)
Truce - ala GS
LY.MI.
gurdonark
Dec. 10th, 2007 07:14 pm (UTC)
I'm sorry that you're having all these health issues. I hope for the best with all this.
1smart1
Dec. 10th, 2007 07:31 pm (UTC)
Like you said, you just can't catch a break, can you? Yeesh! I intended to sit you down and ask about your medical issues when I got there because I've been very worried about you, and you haven't said much in follow-up to your trip. (Unless I've forgotten it, which is entirely likely)

What is it about us that we fall apart just when we reach the point that life should be good?

I can't wait to get there, girlfriend. We really really need this time together.
oddharmonic
Dec. 10th, 2007 08:29 pm (UTC)
Holy shit.

...

...

Also: http://itsnotlup.us/

(When in doubt, make a House joke.)
trshtwns01
Dec. 10th, 2007 10:21 pm (UTC)
Awesome! In true House manner, I'm off to pop some Vicodin for my foot :)
morzsa
Dec. 11th, 2007 05:36 am (UTC)
Bummer! (Originally I typed a different word here.)
tigerheartdrebl
Dec. 11th, 2007 06:55 pm (UTC)
*HUGS*

Shit hun. I have a friend that has to take coumadin for her heart from time to time, but blood thinners your whole life? That's scary & really really SUCKS! You are SO in my prayers!
darkjenna
Dec. 12th, 2007 06:10 pm (UTC)
I'm not sure if I mentioned it before or not, but I'm having to take Coumadin for the rest of my life too. (Being 30 that's a long time!)

Don't let it get you down! You have come through so much already and there's a number of people who are backing you, standing with you and praying for you! I hope that you will be able to move off the Coumadin to something else that works for you. Stay positive. :)
trshtwns01
Dec. 12th, 2007 08:18 pm (UTC)
Do you drink?

We talked about Plavix at some point, but it isn't as good as Coumadin since it only works for arterial clotting and not venous. Why do you have to take Coumadin?
(Anonymous)
Dec. 13th, 2007 12:57 am (UTC)
I have an occassional drink at new years and sometimes wine if I feel like I want it but I'm not really a big drinker. Being on Coumadin shouldn't hinder drinking that much but you do have to be careful. You won't be able to go hogwild every night but once in a while won't hurt. In fact, my rheumatologist tells me I should have some good red wine at night each night. Lol, it's supposed to help the the blood.

I have to take Coumadin because in 2006 (Jan/Feb), I went to the hospital with pnuemonia. Doing a CT scan they found 2 clots in my right lung. My family has a history of clots so I'm probably predisposed to them. Not to mention that I'm disabled and don't have an active life which leads to sitting a lot.
darkjenna
Dec. 13th, 2007 12:58 am (UTC)
Sorry that above comment was me. I had a brainfart and forgot to log in. If you have anymore questions, I'm happy to answer what I can. Hang in there.
( 14 thoughts — Whatcha' think? )